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Amara Out and About

Six year old Amara is a very happy and social child who loves people and watching Mickey Mouse.

Amara has cerebral palsy, microcephaly, epilepsy and a vision impairment. Her disabilities are such that for much of the day she needs to be using equipment and doing different types of therapy.

Amara spends quite a bit of time in hospital due to her life threatening seizures, which can be isolating. “We don’t like to be too far from a major hospital in case she has a seizure so it makes travel difficult and we need to limit Amara’s contact with others to lessen the risk of infection from prolonged exposure,” her mum, Ilse says.

Despite the challenges of this isolation, Ilse works tirelessly to provide the best opportunities for her daughter. Amara also likes swimming and going for bike rides. She uses a manual wheelchair which others have to push.

The physical, social and emotional benefits of bike riding led Ilse to apply to TAD for a Freedom Wheels bike for Amara.

The Freedom Wheels assessment found the modifications did not provide enough postural support for Amara to be in a comfortable position.

The family had a trike at home but it needed to be modified to provide better head support for Amara and the seat modified to make it more comfortable so she could take longer rides.

TAD Volunteer Alan Stone took on the project. With a broad skill set including upholstery, Alan re-engineered the steering linkages and moved the hand brake to the rear handle bars so Ilse could activate the brake when needed. Alan also repositioned the seat at a more suitable angle for Amara and custom made a sunshade.

Alan took care to make sure the modifications were just right for Amara and Ilse.

Ilse says she found Alan lovely to work with, praising him for his understanding, compassion and generosity in arranging the modifications to Amara’s trike, not to mention his skills.

“Alan knew exactly what to do and how to do it,” Ilse says.

Since Alan made the modifications to Amara’s trike, life has been made much easier for Ilse and the family.

 “We are so grateful that he donated his time and resources for our princess,” says Ilse.

The benefits to Amara have been immense.

“It’s great for her to get outdoors and get some leg exercise!” says Ilse.

Amara goes riding several times a week, delighting in the chance to be able to ride a bike like other children her age.

The final word is left to Ilse, “I would like to say a big thank you to the volunteer, Alan Stone, who has made a huge difference to my daughter’s outdoor experience.”

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TAD acknowledges the traditional owners of country throughout Australia and recognises their continuing connection to land, waters and community. We pay our respects to them and their cultures and to elders past, present and emerging.